As we wrap up our Thanksgiving celebrations in the United States, we want to share our gratitude for the entire RUNX1-FPD community. Thank you for being part of this journey!
This month’s newsletter includes the kick-off to our year-end awareness campaign, an upcoming research grant deadline, and helpful resources for individuals with RUNX1-FPD and their families. |
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| Navigating New Frontiers: The Journey Into 2026 Begins |
We have officially kicked off our 2025 year-end campaign, Navigating New Frontiers. 100% of every donation directly supports research acceleration and patient education.
Today is Giving Tuesday, and we hope you will join us in keeping this momentum strong at a time when generosity can make an even greater impact. Together, we’re navigating new frontiers, one act of generosity at a time. |
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RUNX1 Clinical Trials Spotlight
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Are you an individual with RUNX1-FPD interested in contributing to medical advancements for this disease? By participating in research initiatives, you can help advance our understanding of RUNX1-FPD, improve patient care, and be a part of groundbreaking research. |
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Two research studies at the National Institutes of Health (NIH) are currently enrolling eligible individuals with RUNX1-FPD. You may be eligible to join one or both studies, depending on your health history and interest, to maximize your travel to the NIH. |
RUNX1-FPD Clinical Research Study (also known as the NIH Natural History Study): This study follows patients over time to help researchers understand why some people with RUNX1-FPD develop blood cancer while others do not.
Imatinib Clinical Trial: This study is testing the safety and tolerability of the drug imatinib in RUNX1-FPD patients, with the goal of seeing whether it can safely increase RUNX1 protein levels and support healthy blood cell development. |
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| RUNX1-FPD patients and their families are invited to join us in Atlanta next spring for the 2026 RUNX1 Patient Meeting.
There is no registration fee, and RRP covers travel, lodging, and meals for individuals with RUNX1-FPD, all children traveling with them, and one close family member.
Please note that we welcome both children with RUNX1-FPD and those without to join us and participate. Hope to see you there! |
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| Applications Open for the RRP-ALSF 2026 RARE Grant
Deadline: Thursday, December 11, 2025 |
The application deadline for the 2026 Research Accelerating RUNX1 Exploration (RARE) Grant is quickly approaching. This $250,000, two-year award supports research that identifies druggable oncogenic pathways and advances cancer interception and prevention strategies toward clinical application. Click below for more information and application guidelines: |
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Please register* to join us in Atlanta, Georgia, for the 10th Annual RUNX1 Scientific Conference. The conference will feature plenary talks, collaborative breakout sessions, and poster sessions dedicated to graduate and postdoctoral student researchers.
Attendees will gain access to the latest findings, forge new research partnerships, and help shape the future of RUNX1-FPD science. |
*If you are a current RRP grantee or SAB member, please reach out to Catherine Pelton at cpelton@runx1-fpd.org for a registration promo code. |
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Please Share RRP's Patient Resources Widely |
Because RUNX1-FPD is so rare, many patients often struggle to find reliable information and others who understand their journey. At RRP, we bridge that gap by connecting families with resources that include: - Research opportunities: Access to current clinical trials and studies dedicated to improving diagnosis, care, and blood cancer prevention.
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Trusted resources: Downloadable guides (including Spanish-language versions) and quick-reference tools for newly diagnosed patients.
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Educational events: Webinars and virtual meetings that share practical strategies and the latest research updates.
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Community connections: A private patient Facebook group, WhatsApp chats for parents and UK-based patients, and quarterly virtual forums where families can meet and discuss the topics most important to them.
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None of the news you just read is possible without support from our generous donors. Please consider a gift of any size today. RRP commits 100% of direct donations to fund research and educational programs. |
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